Everyone has the ability to become an advocate.
There is no special training or specific experience required. The more voices we have behind our mission, the greater progress we will achieve toward our mission of building a center of excellence for rare conditions in Kansas City.
Join families and community stakeholders as we discuss the unique challenges and unmet needs of Rare Disease. This town hall event is free and open to the public.
Individuals, families and friends whose loved ones have been touched by rare disease or a genetic condition are encouraged to attend, particularly those interested in advocating for rare disease and improved care coordination. Please come prepared with your strengths, resources and positive suggestions for improving and advancing rare care!
Required registration is limited to the first 200 individuals to do so. Please register using the form below or e-mail email@example.com before Feb. 26.
RareKC TownHall Event 2018 - Free + Open to the public
Monday, March 5 - 8am through Noon
Kauffman Foundation Conference Center
There are many ways you can help!
You can make a personal donation, volunteer your time, or become a corporate alliance member.
Monetary donations are tax-exempt and provide essential support for growing RareKC's initiative.