Get Involved

Partner with RareKC

Learn more about how you can partner with RareKC and support the Rare community in Kansas City!

» Partner with us

Become A Sponsor

Does your business or organization what to sponsor a RareKC event or activity? Please contact us to learn more.

» Contact Us

Volunteer With Us

Please contact us to learn more about opportunities to volunteer your voice, time or expertise.

» Volunteer

Support Us

Support our rare patients and families to create hope in times of struggle and isolation.

Share Your Rare Story

Join other patients and families who have contributed their personal accounts of living with a rare disease. Together we are stronger than RARE!

Help Us Share Our Story

For media requests including speaking engagements, high-resolution photos and interviews, please contact us.

Join Our Mailing List

We bring together all persons impacted by rare diseases and conditions in the Kansas City region and beyond. Please join our mailing list for up-to-date information and event activity.